Measuring the Concept of Impact of Childhood Disability on Parents: Validation of a Multidimensional Measurement in a Cerebral Palsy Population

Autor/inn/en	Guyard, Audrey; Michelsen, Susan I.; Arnaud, Catherine; Lyons, Alan; Cans, Christine; Fauconnier, Jerome
Titel	Measuring the Concept of Impact of Childhood Disability on Parents: Validation of a Multidimensional Measurement in a Cerebral Palsy Population
Quelle	In: Research in Developmental Disabilities: A Multidisciplinary Journal, 33 (2012) 5, S.1594-1604 (11 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	0891-4222
DOI	10.1016/j.ridd.2012.03.029
Schlagwörter	Family Attitudes; Family Life; Cerebral Palsy; Disabilities; Factor Analysis; Foreign Countries; Psychometrics; Parent Child Relationship; Children; Family Work Relationship; Interpersonal Relationship; Case Studies; Questionnaires; Adolescents; Interviews; Family Financial Resources; Intervention + Suchen Sie Ihr Suchwort? Hirnlähmung; Handicap; Behinderung; Faktorenanalyse; Ausland; Psychometry; Psychometrie; Parents-child relationship; Parent-child-relation; Parent-child relationship; Eltern-Kind-Beziehung; Child; Kind; Kinder; Interpersonal relation; Interpersonal relations; Interpersonelle Beziehung; Zwischenmenschliche Beziehung; Case study; Fallstudie; Case Study; Fragebogen; Adolescent; Adolescence; Adoleszenz; Jugend; Jugendalter; Jugendlicher; Interviewing; Interviewtechnik
Abstract	Living with a child with a disability can affect family life in various domains. Impacts on time, expenses, work, relationships within the family, social relationships and physical and psychological health can be observed. The Family Impact of Childhood Disability (FICD) is a specific instrument designed to assess this situation. Used in a cross-sectional survey, this questionnaire was extended to consider two missing aspects: impact on work and health (FICD + 4). This paper addresses the psychometric qualities of the FICD in Europe among parents living with an adolescent with cerebral palsy. Expecting the FICD + 4 could assess detailed impact dimensions, an exploratory analysis was conducted. We interviewed 242 families of 13- to 17-year-old adolescents with cerebral palsy living in Europe. Good psychometric properties were found in negative and positive FICD scales and in six underlying factors extracted from exploratory factor analysis on FICD + 4. These results support the psychometric validity of the FICD in the assessment of the impact of disability in European families who live with an adolescent with cerebral palsy. They also highlight the multifaceted aspects of the impact of childhood disability on the family and suggest that the FICD + 4 is a good tool for assessing specific negative impacts on time, finances, work, social relationships and positive impacts on parental feeling and family attitude. This scale needs further validation and could be helpful for research and clinical interventions. (Contains 1 figure and 5 tables.) (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2017/4/10